Useful Links
German self-help-group DBA
https://diamond-blackfan.de/
DBAGeneCure (EJPRD-funded consortium)
RiboEurope
webpage will be established soon
EWOG-MDS/SAA
European Working Group of SAA, MDS and JMML in children and adolescents
http://www.ewog-mds-saa.org
Information portal on blood and coagulation diseases
in children and adolescents
(german language only)
https://www.kinderblutkrankheiten.de
„Research for Children“ at the Freiburg Center for Pediatrics and Adolescent Medicine
https://www.research-for-children.de/