DBA-RegisterKoordinierende Studienzentrale

• DBA-Registry (only for patients from Germany)
• Hilda-Biobank (link)
• Information on the DBA-Registry (in German, under revision)
  • parents
  • patients
• German Childhood Cancer Registry
  • Informed consent (only for patients from Germany)
  • Informationsflyer (in German)

Only for patients from Germany:

• Initial registration
• HSCT
  • Day 100
  • Annual FUP

Here you will find all information about the recommended diagnostics in case of suspected DBA, including the necessary material and shipping instructions.

• Diagnostics of DBA - flow sheet

Here you will find the laboratory's submission form for bone marrow and blood samples, as well as the instructions for requesting genetic testing, which include all necessary informed consents and submission forms.

• Submission form (Laboratory)
• Instructions for requesting genetic testing

• Transfusion recommendations
• Transfusion dokumentation (form, patients from Germany only)
• Checklist Diagnostics for transfusion therapy
• Checklist Diagnostics for steroid therapy